User menu

Accès à distance ? S'identifier sur le proxy UCLouvain

Patient empowerment in tuberculosis control: reflection on past documented experiences

Primary tabs

Macq, Jean [UCL] Torfoss, Ted Getahun, Haileyesus

OBJECTIVES: To review the available published and non-published literature on patient empowerment in tuberculosis (TB) control, describe what it entails, identify possible trends and conclusions, and suggest areas both for informing policy makers and for orienting further research. METHODS: We searched MEDLINE and PSYCINFO databases, used World Wide Web research tools and included conference abstracts and specific project reports. RESULTS: Experience shows that operational definitions, potential barriers towards empowerment and contextual issues need to be considered. Four types of experiences were reported: (1) enabling patients to take more responsibility for their health, especially regarding adherence to treatment, (2) organizing TB patients into groups and clubs, (3) building patient-centred care in TB and general health services, and (4) using TB patients' advocacy skills to improve TB control. CONCLUSION: Patient empowerment conceptions through interventions and studies should primarily involve TB patients themselves. Patients' activism--their role, the shape it takes and resulting effects--is insufficiently documented

Document type Article de périodique (Journal article) – Synthèse de littérature
Access type Accès restreint
Publication date 2007
Language Anglais
Journal information "Tropical Medicine & International Health" - Vol. 12, no. 7, p. 873-885 (2007)
Peer reviewed yes
Publisher Wiley-Blackwell Publishing Ltd. (Chichester)
issn 1360-2276
e-issn 1365-3156
Publication status Publié
Affiliation UCL - MD/ESP - Ecole de santé publique
Keywords Tuberculosis ; Patient empowerment ; Evaluation
Links
  1. Alvarez-Gordillo Guadalupe del Carmen, Alvarez-Gordillo Julio Félix, Dorantes-Jiménez José Eugenio, Halperin-Frisch David, Percepciones y prácticas relacionadas con la tuberculosis y la adherencia al tratamiento en Chiapas, México, 10.1590/s0036-36342000000600008
  2. Akramul, International Journal of Tuberculosis and Lung Disease, 9, 0S37 (2005)
  3. Allen, International Journal of Tuberculosis and Lung Disease, 7, S190 (2003)
  4. Alvarez Gordillo, Revista Panamericana De Salud Publica, 14, 402 (2003)
  5. Asociacion de Enfermos de Tuberculosis (ASET) 2005 Experiencias y aportes en la lucha contra la tuberculosis http://www.minsa.gob.pe/portal/03Estrategias-Nacionales/04ESN-Tuberculosis/esn-tbcexp.asp
  6. Atre, Tropical Medicine & International Health, 9, 1228 (2004)
  7. Augland K 2005 TB-Patient Evaluation Penduka TB-Training Project 1 73
  8. Bam, SAARC Journal of Tuberculosis, Lung Diseases & HIV/AIDS, 1, 43 (2004a)
  9. Bam, International Journal of Tuberculosis and Lung Disease, 8, 0S176 (2004b)
  10. Banerjee, Tropical Doctor, 27, 240 (1997)
  11. Bond, International Journal of Tuberculosis and Lung Disease, 9, 282 (2005)
  12. Cabrera, Patient Education and Counseling, 46, 117 (2002)
  13. Case, International Journal of Tuberculosis and Lung Disease, 9, 0S46 (2005)
  14. Case , G 2006 The Patients’ Charter for Tuberculosis Care http://www.worldcarecouncil.org/pdf/PatientsCharterEN2006.pdf
  15. Cass, International Journal of Tuberculosis and Lung Disease, 9, 415 (2005)
  16. CDC, Morbidity and Mortality Weekly Report, 41, 1 (1992)
  17. Chaisson, The American Journal of Medicine, 110, 610 (2001)
  18. Chesire, TBTV is the Greatest Thing to Happen (2006)
  19. Dandona, The National Medical Journal of India, 17, 292 (2004)
  20. Datta, Towards…Introducing Culturally Sensitive Tuberculosis Education and Context Specific Patient Screening, 1 (2006)
  21. Dembele, International Journal of Tuberculosis and Lung Disease, 7, 0S128 (2003a)
  22. Dembele, International Journal of Tuberculosis and Lung Disease, 7, S192 (2003b)
  23. Demissie, Social Science Medicine, 56, 2009 (2003)
  24. Dick, The International Journal of Tuberculosis and Lung Disease, 1, 181 (1997)
  25. Dick, Tubercle and Lung Disease, 77, 173 (1996)
  26. Dick, Journal of Advanced Nursing, 48, 434 (2004)
  27. Drabo, International Journal of Tuberculosis and Lung Disease, 10, 93 (2006)
  28. Dutton, Social Science Medicine, 23, 721 (1986)
  29. Eastwood, International Journal of Tuberculosis and Lung Disease, 8, 70 (2004)
  30. El Saadr, Pathways to Completion Study (2006)
  31. Franks, Adherence to Treatment for Latent Tuberculosis Infection: A Manual for Health Care Providers, 1 (2005)
  32. Getahun, Africa Health, 21, 20 (1998)
  33. Getahun, International Journal of Tuberculosis and Lung Disease, 4, 174 (2000)
  34. Gie, Peer Workers for Adherence to Treatment for Latent Tuberculosis Infection: The Peer Worker Perspective (2001)
  35. Hampton, A Survivor of Africa's Twin Epidemics, Winston Zulu Pushes for New TB Drugs (2006)
  36. Harries, ‘Community TB Care in Africa’, A Collaborative Project Coordinated by WHO. Report on a ‘Lessons Learned’ Meeting in Harare, Zimbabwe, 27-29 September 2000, 1 (2001)
  37. He, International Journal of Tuberculosis and Lung Disease, 9, S135 (2005)
  38. Houston, Ethnicity & Health, 7, 255 (2002)
  39. Hovell, American Journal of Public Health, 93, 1871 (2003)
  40. Hurtig, International Journal of Tuberculosis and Lung Disease, 3, 553 (1999)
  41. Jaramillo, Contribución de la comunidad a la atención de la tuberculosis: una perspectiva Latinoamericana, 1 (2002)
  42. Johansson, Qualitative Health Research, 12, 473 (2002)
  43. Karim, Gender Barriers to Tuberculosis Control: Fade-out or in? Key Findings and Recommendations from the Preliminary Analysis (2003)
  44. Kironde, International Journal of Tuberculosis and Lung Disease, 6, 104 (2002)
  45. Lewin, Bulletin of the World Health Organization, 83, 250 (2005)
  46. Lienhardt, Tropical Medicine & International Health, 9, 833 (2004)
  47. Macedo, International Journal of Tuberculosis and Lung Disease, 7, 0S230 (2003)
  48. Macq, International Journal of Tuberculosis and Lung Disease, 7, 103 (2003)
  49. Macq, International Journal of Tuberculosis and Lung Disease, 8, 1330 (2004a)
  50. Macq, International Journal of Tuberculosis and Lung Disease, 8, 0S89 (2004b)
  51. Macq, Comparing Community Involvement in TB Care in Nicaragua and Burkina Faso (2005a)
  52. Macq, International Journal of Tuberculosis and Lung Disease, 9, S70 (2005b)
  53. Macq Jean, Solis Alejandro, Martinez Guillermo, Martiny Patrick, Dujardin Bruno, An exploration of the social stigma of tuberculosis in five “municipios” of Nicaragua to reflect on local interventions, 10.1016/j.healthpol.2005.01.003
  54. Macq, Psychology, Health & Medicine Journal, 11, 346 (2006)
  55. Manders, International Journal of Tuberculosis and Lung Disease, 5, 838 (2001)
  56. Martin, International Journal of Tuberculosis and Lung Disease, 9, 550 (2005)
  57. Morisky Donald E, Malotte C.Kevin, Ebin Vicki, Davidson Paul, Cabrera Daniel, Trout Perlee T, Coly Astou, Behavioral interventions for the control of tuberculosis among adolescents, 10.1016/s0033-3549(04)50089-4
  58. MSH 2001 Response from Damian Foundation to a Survey Sent Out in 2001 by RPM Plus, STOP TB, WHO, and the World Bank http://www.msh.org/projects/rpmplus/3.5.5.htm
  59. Myrseth, The Human Rights and TB-control (2006)
  60. Natpratan, International Journal of Tuberculosis and Lung Disease, 9, 0S46 (2005)
  61. Needham, International Journal of Tuberculosis and Lung Disease, 2, 811 (1998)
  62. Needham, Health Policy, 67, 93 (2004)
  63. Ngamtrairai, International Journal of Tuberculosis and Lung Disease, 8, 0S174 (2004)
  64. Van Der Oest, The New Zealand Medical Journal, 118, 0U1496 (2005)
  65. Ogden, International Journal of Tuberculosis and Lung Disease, 3, 855 (1999)
  66. Paton, The American Journal of Clinical Nutrition, 80, 460 (2004)
  67. Rajeswari, Social Science & Medicine, 60, 1845 (2005)
  68. Rangan, Tuberculosis, 83, 165 (2003a)
  69. Rangan, Health Administrator, 15, 72 (2003b)
  70. Raye, International Journal of Tuberculosis and Lung Diseases, 8, 0S210 (2005a)
  71. Raye, International Journal of Tuberculosis and Lung Disease, 9, 0S122 (2005b)
  72. Rosas, International Journal of Tuberculosis and Lung Disease, 9, 0S20 (2005)
  73. Salim, International Journal of Tuberculosis and Lung Disease, 7, 0S255 (2003)
  74. Sanou, Int J Tuberc Lung Dis, 8, 1479 (2004)
  75. Shin, Social Science & Medicine, 59, 1529 (2004)
  76. Siddhi, International Journal of Tuberculosis and Lung Disease, 9, 0S20 (2005)
  77. Sok, International Journal of Tuberculosis and Lung Disease, 8, 0S175 (2004)
  78. Stop TB Partnership & WHO, The global plan to stop TB, 2006-2015/Stop TB Partnership, 35, 1 (2006)
  79. Tavora, International Journal of Tuberculosis and Lung Disease, 8, 0S90 (2004)
  80. Torfoss, Frontline Health Workers (FLHW) can Organise and Encourage (2006)
  81. UNDP 2004 From involvement to empowerment: people living with HIV/AIDS in Asia Pacific UNDP 1 56
  82. Uplekar, Gender and Tuberculosis Control: Towards a Strategy for Research and Action, 1 (1999)
  83. Wallerstein, What is the Evidence on Effectiveness of Empowerment to Improve Health?, 1 (2006)
  84. Wandwalo, International Journal of Tuberculosis and Lung Disease, 8, 1248 (2004)
  85. Wandwalo, Health Policy, 78, 284 (2006)
  86. WHO, An Expanded DOTS Framework for Effective Tuberculosis Control (2002)
  87. WHO, Addressing Poverty in TB Control: Options for National TB Control Programs (2005)
  88. Lawn, International Journal of Tuberculosis and Lung Disease, 4, 1190 (2000)
  89. Liefooghe, Tropical Medicine & International Health, 2, 809 (1997)
  90. New Jersey Medical School National Tuberculosis Center, TB and cultural competency: notes from the field (newsletter), 1 (2004)
Bibliographic reference Macq, Jean ; Torfoss, Ted ; Getahun, Haileyesus. Patient empowerment in tuberculosis control: reflection on past documented experiences. In: Tropical Medicine & International Health, Vol. 12, no. 7, p. 873-885 (2007)
Permanent URL http://hdl.handle.net/2078.1/83158