Representing Data Sharing in Informed Consent Guidance for Researchers at the University of Illinois at Urbana-Champaign
Author(s)
Balgopal, Anita
Jones, Patricia
Imker, Heidi J
Novakoski, Jan
Reiter, Phil
Robinson, Julie
Vranic-Sowers, Svetlana
Issue Date
2022-01-24
Keyword(s)
Data Management
Data Sharing
Informed Consent
Research Administration
Human Subjects
Geographic Coverage
University of Illinois at Urbana-Champaign
Abstract
Obtaining appropriate consent is critical to data sharing and to reuse in future research. This guidance provides models and advice to consider when creating or revising informed consent language.
Many major US funding agencies (for example NIH, NSF, etc.) now strongly encourage data sharing and reuse and may even require it as part of the grant award. Similarly, many academic publishers also encourage data sharing. In fact, articles have been retracted because of the author’s inability to provide the underlying data when a study’s validity has been questioned.
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