State of the art of family quality of life in early care and disability: A systematic review
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Attribution 4.0 International © 2020 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license
Publicado en
International Journal of Environmental Research and Public Health, 2020, 17, 7220;
Editorial
MDPI
Palabras clave
Family quality of life
Disability
Early childhood intervention
Measurement
Conceptualization
Resumen/Abstract
Abstract: Background: In recent years, there has been a growing international interest in family quality
of life The objective of this systematic review is to understand and analyze the conceptualization
of the quality of life of families with children with disabilities between 0 and 6 years of age,
the instruments for their measurement and the most relevant research results. Method: A bibliographic
search was conducted in the Web of Science, Scopus and Eric databases of studies published in
English and Spanish from 2000 to July 2019 focused on ?family quality of life? or ?quality of family
life? in the disability field. A total of 63 studies were selected from a total of 1119 and analyzed
for their theoretical and applied contributions to the field of early care. Results: The functional
conceptualization of family quality of life predominates in this area, and a nascent and enriching
holistic conceptualization is appreciated. There are three instruments that measure family quality
of life in early care, although none of them is based on unified theory of FQoL; none of them focus
exclusively on the age range 0?6 nor do they cover all disabilities. Conclusions: The need to deepen
the dynamic interaction of family relationships and to understand the ethical requirement that
the methods used to approach family quality of life respect the holistic nature of the research is noted.
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