Evaluation de la qualité de vie dans la maladie d’Alzheimer et les troubles apparentés

Missotten, Pierre; Squelard, Gilles; Ylieff, Michel

doi:10.3917/gs.133.0115

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Article (Scientific journals)

Evaluation de la qualité de vie dans la maladie d’Alzheimer et les troubles apparentés

Missotten, Pierre; Squelard, Gilles; Ylieff, Michel

2010 • In Gérontologie et Société: Cahiers de la Fondation Nationale de Gérontologie, 133, p. 115-131

Peer reviewed

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https://hdl.handle.net/2268/72403

DOI
10.3917/gs.133.0115

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Keywords :

quality of life; assessment; Alzheimer; people with dementia; ADRQL; Institution; home

Abstract :

[en] Definition and measure of quality of life (QoL) raise many conceptual and methodological problems. Its assessment in Alzheimer's disease and related disorders is relatively recent. It uses self-assessment or proxy assessment tools. These are the subject of much debate and involve some biases. Current research mainly aims to assess the global level of Alzheimer's QoL, specify the impact of disease and identify the factors that influence it. Data resulting from recent studies using a same instrument, the Alzheimer’s Disease Related Quality of Life (ADRQL), show that the decrease in QoL is less catastrophic than what is usually stated. This is influenced by the level of dependency, by cognitive deficits and especially psychological and behavioural disorders. Moreover, QoL does not seem to decrease linearly during the staging. It may have periods of stability despite the worsening of cognitive impairment. QoL does not appear to be higher in subjects living at home. Current data could contribute to ethical debates about the meaning to life of Alzheimer persons, on their end-of-life and the finality of care.

Disciplines :

Treatment & clinical psychology

Author, co-author :

Missotten, Pierre ; Université de Liège - ULiège > Département de personne et société > Psychologie de la sénescence

Squelard, Gilles ; Université de Liège - ULiège > Département de personne et société > Psychologie de la sénescence

Ylieff, Michel ; Université de Liège - ULiège > Département de personne et société > Département de personne et société

Language :

French

Title :

Evaluation de la qualité de vie dans la maladie d’Alzheimer et les troubles apparentés

Alternative titles :

[en] Assessment of quality of life in Alzheimer's disease and related disorders

Publication date :

July 2010

Journal title :

Gérontologie et Société: Cahiers de la Fondation Nationale de Gérontologie

ISSN :

0151-0193

eISSN :

2101-0218

Publisher :

Fondation Nationale de Gerontologie, France

Special issue title :

Pour une bientraitance: faut-il repenser le soin?

Volume :

133

Pages :

115-131

Peer reviewed :

Peer reviewed

Available on ORBi :

since 18 September 2010

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