Título
Family quality of life in Neurodegenerative Diseases and associated factors [Dataset]
Autor(es)
Palabras clave
Neurodegenerative diseases
Family quality of life
FQOLS-ND
Services
Clasificación UNESCO
3207.11 Neuropatología
6310.09 Calidad de Vida
Fecha de publicación
2021
Editor
Springer
Citación
NEUROQUALYFAM group (2021). Family quality of life in Neurodegenerative Diseases and associated factors [Dataset]. DOI:
10.14201/gredos.147031
Resumen
[EN]This database was developed in a study of 300 family members of patients with Neurodegenerative Diseases (NDs), living in the cross-border region of Spain-Portugal, mostly in rural areas (70% females, mean age: 62.4). The majority were primary caregivers. Data were collected from October 2019 to July 2020 through a survey administered via telephone. Concretely, the FQOLS–ND examined how the family perceived its quality of life at the global and domain-level, in terms of attainment and satisfaction. It also collected data on diverse sociodemographic, family, and social-health factors. The survey is available at: http://hdl.handle.net/10366/145788.
Citado en
González, E., Aza, A., Vicario-Molina, I., Gómez-Vela, M., Orgaz, M., & Badia, M. (2021). 416 - Family quality of life in Neurodegenerative Diseases and associated factors. International Psychogeriatrics, 33(S1), 39-39. doi:10.1017/S1041610221001757.
http://hdl.handle.net/10366/148273
URI
DOI
Es parte de
Tabla de contenidos
The variables included are: (1) Family Quality of Life (FQOL) at the global and domain-level, in terms of attainment and satisfaction (2) Sociodemographic factors (e.g., gender, age, educational level, employment status, income, civil status, type of relationship with the patient, living condition) (3) Family factors (e.g., communication skills, basic and instrumental activities of daily life) (4) Social Health factors (e.g., use of services, perceived barriers to services)
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